Thumbs up! When we last updated you, Kevin had begun therapy at St. John’s outpatient rehab. He also started producing “ahhh” sounds and being more consistent with squeezing his hands. Therapy has continued to go well and there are many things with which to update you.
In the past few weeks Kevin has seen several doctors. He saw his general doctor, Dr. Ting, who thought Kevin continues to look better every time she sees him. She took care of some med changes and details, then made our next appointment for two months to give us a break since Kevin is seeing so many docs right now.
Kevin saw his pulmonologist, Dr. Kennedy, who changed his trach (always a little blood and trauma, but getting easier each time). She also thought Kevin looks better each time she sees him. She has been seeing him since September 2009. She was happy to hear about the “ahhh” sounds and wanted us to continue doing what we were doing with him at home and in speech therapy.
Kevin saw his eye doctor, Dr. Peters, yesterday. This is the doctor who started seeing Kevin about his right eye issue. He was incredibly pleased with how Kevin was doing. He looked at Kevin’s eyes and saw Kevin try to avoid his bright light in each eye. Angie had made a very astute observation about Kevin’s right eye. We haven’t been able to know if Kevin could see out of his right eye due to the exposure issue and trauma inflicted on the right side of his head. She noticed if you brought your finger in front of Kevin’s right eye without his left eye seeing you and placing it directly in front of his eye, he starts to blink, except not so much in his right eye. He starts rapidly blinking his left eyelid. You can see movement in his right, but it is nothing compared to the defensive reaction you see on the left. That means Kevin is able to see something in his right eye, even if he isn’t able to respond as fluidly with his reaction on the right side. In six months we are to return to the eye doctor and he plans on doing some dilation studies and tests.
Since leaving Meadowbrook back in December, we have tried to find a neurologist to follow Kevin throughout his recovery. In fact, we were looking fervently for one during the months leading up to Kevin’s discharge from Meadowbrook. Kevin’s general doctor found one, Dr. Richter. In fact, since getting him to sign on, we have found many different connections to this doctor through friends and family. We went to the appointment with low expectations since our experience so far had been abysmal with the neuro field. We were advised that the doctor was older and would take his time. We thought that was good, then we received the advise to get a book. We realized that since he would take his time with Kevin, he would also take his time with every patient prior to Kevin. We saw the doctor about an hour and a fifteen minutes after Kevin’s appointment. We couldn’t have been more impressed. He dove straight in with an examination, choosing not to read other opinions before getting his own history. He is from the old school, using a little hammer to check Kevin’s reflexes. He commented that Kevin must have made much progress to get to this point. In taking a pin and pricking up each side of his chest, he noted that the response wasn’t consistent. He got stronger as he moved up Kevin’s chest. He hypothesized that Kevin may have had some spinal cord damage around the area of the neck fractures. Obviously, it isn’t a complete tear in the spinal cord, since Kevin feels and responds to all kinds of various stimuli throughout his body, but it might explain some things and give Kevin another hurdle to jump over. He scheduled an MRI of his head and neck, as well as an EEG to measure brain waves. He told us to continue playing his favorite music, talking to him and speaking positive of his recovery to him. Then he really blew us away. He pulled out a Bible from the shelf and found a scripture to encourage us.
“ 4Rejoice in the Lord always. I will say it again: Rejoice! 5Let your gentleness be evident to all. The Lord is near. 6Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. 7And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.” Philippians 4:4-7.
He then left us with this thought. He said, “…and remember Abraham was thankful to God for what he didn’t yet have.” He didn’t want us to lose heart. When he spoke, he spoke to Kevin. He looked at him and us, as if there was hope and listened to what we have seen and experienced. We are so grateful for Kevin’s doctors and therapists. They are truly a team put together by God for such a time as this.
Kevin has continued producing sounds upon request while wearing the one way valve. He has tolerated the valve on his trach well and building on his responses and consistency. He has produced other sounds too, such as “H” sounds and various groans and moans as he continues to adjust how to use his vocal cords once more. Kevin’s speech therapist showed us how to put a finger to Kevin’s throat to see if he is trying to produce certain sounds, even if we can’t hear anything. Try holding your finger to your neck and breathe, then try it while speaking….see the difference? Last week, Angie and our nurse that day, heard Kevin try to say “hi” three times. He would cough in and around the words until the third time, when he let out a more normally pitched, “hi” then proceeded to cough as it isn’t easy to make these sounds after so long. They came and woke me up, but he had already used all his energy. When asked to make his sounds louder, he does, which shows comprehension. He tries really hard and then has to take a break.
Last week, during one of my night shifts with Kevin, he was slowly turning both his hands by moving them back and forth. He also seemed really alert at 1:45 AM (not abnormal for Kevin before or after). Not sure what prompted me to ask now, but I asked him to give me a thumbs up. You see, some people can discount squeezing a hand, for twitches, even if he wasn’t doing it prior to asking, and doesn’t do it afterwards. But a thumbs up, that means there is comprehension and response. I watched for about five minutes as he pulled his four fingers in to form the foundation of a thumbs up. His thumb lay flat against his hand. As I continued to ask, I saw his thumb muscles twitch. He slightly and slowly moved his thumb. He would try to raise it, but it seemed glued to his hand. Then I saw the amazing quick lift up about an inch towards giving me a thumbs up. His thumb immediately went back down, but I was so excited. I kept asking and asking, kept pushing and encouraging as if I was spotting him while lifting a challenging weight of barbells. I kept seeing his thumb twitch, but only after I asked for it each time. Two more times he raised his thumb up about an inch. At that point I went to wake up Angie. It was the first time, I have ever woke her up at night since bring Kevin home almost five months ago. She came out and saw Kevin responding to my voice and challenge to move his thumb. He didn’t get his thumb any higher that night, but he had most definitely reached a new plateau in recovery.
Over the next few days, I repeated the challenge with other family members around like his kids. He would slightly move his thumb, trying hard to get rid of the invisible rubber band holding his digit down. Then on Monday, when we returned to therapy, I shared what had been happening. Kevin seemed very sleepy during therapy, so they spent much energy waking him up, just in time for the speech therapist to come in. Today, we returned to therapy and I dropped off Kevin, Angie and our nurse. I am trying to fulfill my new role with Team Expansion and set aside hours to make that succeed. I have been working on average 40 hours per week since starting in this new role. So today, I went off to a Borders bookstore with free wifi and I proceeded to work, returning about thirty minutes before Kevin’s therapy was over. The speech therapist, who had seen Kevin first today, bumped into me as I was coming and told me how she had come back up to Kevin during his other therapy and asked Kevin to give her a really loud sound and she would leave him alone today. She said about a second later he let a big “AHHHHH”. So she said okay and let him be.
I thought that quick accurate response was going to be the big news of the day. I was wrong. I went in to Angie and the therapists excitedly recounting what Kevin had done. He gave them six thumbs up!!! I was amazed. I asked if it was the half lifts, like I had seen and been practicing with him, and they told me know. They said they were full on thumbs up! They said when they would ask for it, he would raise his thumb up and it quiver as he held it for a moment. Then he would let it back down. It was like doing reps at the gym. Awesome progress!
We got Kevin an ipod touch for use in therapy. They use it to push him further. They turn on one of his favorite songs then pause it saying they’ll turn it back on if he does whatever they ask him to do (squeeze a hand, make a sound, turn his hand, you get the idea). We have put a couple audio books on it from Audible.com. Yesterday, when Kevin I were here alone, I put a sermon from North Coast Church on for him to listen to and then put ESPN radio on for him to catch up with sports. We have found several apps (programs) to use with him for stimulation and training. We also bought an app which plays about fifty different ambient environments that we can use when he has trouble sleeping (rain, ocean waves, white noise, etc…) or for stimulation (cars, street life, airplanes, etc…). This week I will be putting some voice messages on it that he left us while we were in Italy. Vonage sends voicemails to email and I saved every one of them. This is a way that he can hear his own voice during therapy.
If you’ve read this far, I congratulate you and thank you for your love for Kevin, so much that you read my boring dribble to hear news of his recovery. Before closing, I wanted to mention a couple ways for people to help. If you want to buy iTunes gift cards for Kevin, we can use them to buy more stimulating apps, his favorite music and audiobooks. Any denomination is appreciated. Also, we are wanting to put up a privacy fence in Kevin’s back yard. It only needs one side, two neighbors already have them. It would enable a little more intimacy when taking Kevin outside. It would also allow us to create an outdoor shower, which has been done by others and suggested by a medical professional. Right now, Kevin gets bed baths every day, this would give him a new sensation on warm sunny days.
Thanks for caring. Thanks for reading. And thanks for praying.
Matt, Angie and family
_______________________________
Pray For Kevin
http://www.prayforkevin.com/
follow on twitter: pray4kevin
facebook: Pray for Kevin
Wednesday, May 5, 2010
Wednesday, April 14, 2010
Update #121 on Kevin
I was planning on writing an update that told you it felt like we were moving into the next level of recovery for Kevin. Then something happened this afternoon that cemented this into our hearts and bolstered our faith.
Last Friday, we took Kevin to St. John’s outpatient rehab for some evaluations. We were requesting evaluations for physical therapy (PT), occupational therapy (OT) and speech therapy. We had appointments for the PT and OT evals and a doctor’s order for the speech evaluation. We didn’t know what to expect. We have been blessed to have some pretty good therapists for Kevin so far, and you never know if you might get a bad egg! Also, we have yet to have a speech therapist get excited about working with Kevin. Most therapists don’t have the experience with someone in Kevin’s condition, their experience usually comes from stroke victims or something similar.
Friday we went in with the hope of getting into regular therapy again (remember our in home therapists discharged Kevin a month or so ago), but the main thing we were there for was the evaluation. We wanted an outside look to see if he was ready for the next level, as well as determine if he needs any preventative splints. The team we ended up with was nothing short of amazing. Great optimistic, hopefully spirits and genuinely excited to work with Kevin. PT & OT were both great (one of them even worked in two brain rehabilitation centers), and the Speech therapist seemed not only knowledgeable, but full of ideas to work with Kevin. They want to see Kevin three times per week, three hours each visit, starting in May. Until then we have a few office visits in April (each Wednesday) and today marked the first.
Kevin remained alert the entire time we were at the rehab center. They saw Kevin trying to follow their commands and being successful some of those times. When we left, Angie and I drove Kevin downtown and took him on a field trip to see the new Driller’s Baseball Stadium, OneOK field. We parked and took him over to the fence to see the new field and the Drillers warming up for that night’s second game in the stadium so far. After that, we went over to the Coney Island, a downtown Tulsa institution and a favorite in our family. We got Coneys to go and let Kevin smell them, providing some brain stimulation.
After leaving the rehab center on Friday, we were excited, optimistic and recharged about Kevin’s recovery. However, we tempered it with the fact that was our first impression and we didn’t know how the actual therapy sessions would go. Today, was the first session. Kevin, while worn out towards the end, stayed alert the entire time we were there. They lifted Kevin out of his chair and placed him on a large bed/table where they could try different things. They noticed him holding up his head. They felt him squeezing their hand when they asked him. They saw him moving his eyes to look at them in response to them asking him to look at them. Then after his eyes made the journey, his head would follow. He did all these things much more consistently then he was doing them a month ago. His muscles got a workout when they had him sit on the edge of the bed/table, his feet off the side on the floor, with limited support. They did the same things we have been doing, providing some support, leaning him from side to side for weight shifting, but they added something to the mix. They were leaning him forward and back, like he was rowing a boat. At one point, the therapist supporting his back, said I am just giving him a little support to his head, I’m not even supporting his back right now, he’s doing that!
After PT and OT did their thing, it was the Speech therapists turn. They put a one-way valve on Kevin to start. If you’ll remember from our days at Meadowbrook, the respiratory therapists used to put this on to listen for sounds and determine if he could tolerate wearing it. It allows air to be breathed in, but he has to breathe out through his nose and mouth. This allows air to travel through his throat creating sounds. The Speech therapist was great. She did several things, such as trying to get Kevin to open an close his mouth. She asked him a few times to squeeze her hand, to which he did a couple times in response. Then she used a lemon flavored swab to see if he would have a reaction to the sour flavor. He did. He didn’t like it too much, moving his head away and making a face. Then came the really cool part. She was trying to get Kevin to make some sounds. She tried several times to get him to say something, to her, to Angie and to me. Nothing. Then she tried again and asked him to make an “ahhh” sound. She encouraged him to open his mouth by touching his bottom lip and to our great surprise he let out a soft “ahhhhhhh”. We were blown away. She asked him again and Kevin responded a second time with “ahhhhhh” softly. The PT that was working with Kevin before was about twenty feet away and working with another patient. She heard Kevin and our response and she told the Speech therapist that she wants to start videoing these sessions with Kevin. I had been taking pictures and decided to turn on the video recording mode of the camera. If he did it again, I would be ready. She proceeded to ask Kevin two more times to make a sound, this time saying she didn’t care if he groaned, said “ahhh” or whatever. Kevin was getting worn out, but he responded both those times too, although it started to be quieter and softer than the first two times. We left the center rejoicing and looking forward to the next time. On the way out, a mother introduced herself to us. We had heard of her and her son. Four years ago, her son had been in a car accident leaving him with brain injuries and in a coma state. The medical community didn’t leave their family with much hope. Their son didn’t making any vocal sounds for several months. And now, he is walking and talking and dressing himself. He is still in rehab, continuing to learn how to walk without a cane and maybe more, but he doesn’t have any memory loss and has come so far. She credits God with how far her son has come. Her message to us….don’t give up! Don’t give up. There will be days and times of discouragement, but don’t give up. There will be moments when no one else understands what you are going through, but don’t give up.
So, refreshed, recharged and optimistic we go to bed tonight. Thankful for how far Kevin has come so far and excited to see what God will do through him as we go on this journey. Thanks for reading and caring. It means so much to our family.
Thanks,
Matt, Angie and family
_______________________________
Pray For Kevin
http://www.prayforkevin.com/
follow on twitter: pray4kevin
facebook: Pray for Kevin
Last Friday, we took Kevin to St. John’s outpatient rehab for some evaluations. We were requesting evaluations for physical therapy (PT), occupational therapy (OT) and speech therapy. We had appointments for the PT and OT evals and a doctor’s order for the speech evaluation. We didn’t know what to expect. We have been blessed to have some pretty good therapists for Kevin so far, and you never know if you might get a bad egg! Also, we have yet to have a speech therapist get excited about working with Kevin. Most therapists don’t have the experience with someone in Kevin’s condition, their experience usually comes from stroke victims or something similar.
Friday we went in with the hope of getting into regular therapy again (remember our in home therapists discharged Kevin a month or so ago), but the main thing we were there for was the evaluation. We wanted an outside look to see if he was ready for the next level, as well as determine if he needs any preventative splints. The team we ended up with was nothing short of amazing. Great optimistic, hopefully spirits and genuinely excited to work with Kevin. PT & OT were both great (one of them even worked in two brain rehabilitation centers), and the Speech therapist seemed not only knowledgeable, but full of ideas to work with Kevin. They want to see Kevin three times per week, three hours each visit, starting in May. Until then we have a few office visits in April (each Wednesday) and today marked the first.
Kevin remained alert the entire time we were at the rehab center. They saw Kevin trying to follow their commands and being successful some of those times. When we left, Angie and I drove Kevin downtown and took him on a field trip to see the new Driller’s Baseball Stadium, OneOK field. We parked and took him over to the fence to see the new field and the Drillers warming up for that night’s second game in the stadium so far. After that, we went over to the Coney Island, a downtown Tulsa institution and a favorite in our family. We got Coneys to go and let Kevin smell them, providing some brain stimulation.After leaving the rehab center on Friday, we were excited, optimistic and recharged about Kevin’s recovery. However, we tempered it with the fact that was our first impression and we didn’t know how the actual therapy sessions would go. Today, was the first session. Kevin, while worn out towards the end, stayed alert the entire time we were there. They lifted Kevin out of his chair and placed him on a large bed/table where they could try different things. They noticed him holding up his head. They felt him squeezing their hand when they asked him. They saw him moving his eyes to look at them in response to them asking him to look at them. Then after his eyes made the journey, his head would follow. He did all these things much more consistently then he was doing them a month ago. His muscles got a workout when they had him sit on the edge of the bed/table, his feet off the side on the floor, with limited support. They did the same things we have been doing, providing some support, leaning him from side to side for weight shifting, but they added something to the mix. They were leaning him forward and back, like he was rowing a boat. At one point, the therapist supporting his back, said I am just giving him a little support to his head, I’m not even supporting his back right now, he’s doing that!
After PT and OT did their thing, it was the Speech therapists turn. They put a one-way valve on Kevin to start. If you’ll remember from our days at Meadowbrook, the respiratory therapists used to put this on to listen for sounds and determine if he could tolerate wearing it. It allows air to be breathed in, but he has to breathe out through his nose and mouth. This allows air to travel through his throat creating sounds. The Speech therapist was great. She did several things, such as trying to get Kevin to open an close his mouth. She asked him a few times to squeeze her hand, to which he did a couple times in response. Then she used a lemon flavored swab to see if he would have a reaction to the sour flavor. He did. He didn’t like it too much, moving his head away and making a face. Then came the really cool part. She was trying to get Kevin to make some sounds. She tried several times to get him to say something, to her, to Angie and to me. Nothing. Then she tried again and asked him to make an “ahhh” sound. She encouraged him to open his mouth by touching his bottom lip and to our great surprise he let out a soft “ahhhhhhh”. We were blown away. She asked him again and Kevin responded a second time with “ahhhhhh” softly. The PT that was working with Kevin before was about twenty feet away and working with another patient. She heard Kevin and our response and she told the Speech therapist that she wants to start videoing these sessions with Kevin. I had been taking pictures and decided to turn on the video recording mode of the camera. If he did it again, I would be ready. She proceeded to ask Kevin two more times to make a sound, this time saying she didn’t care if he groaned, said “ahhh” or whatever. Kevin was getting worn out, but he responded both those times too, although it started to be quieter and softer than the first two times. We left the center rejoicing and looking forward to the next time. On the way out, a mother introduced herself to us. We had heard of her and her son. Four years ago, her son had been in a car accident leaving him with brain injuries and in a coma state. The medical community didn’t leave their family with much hope. Their son didn’t making any vocal sounds for several months. And now, he is walking and talking and dressing himself. He is still in rehab, continuing to learn how to walk without a cane and maybe more, but he doesn’t have any memory loss and has come so far. She credits God with how far her son has come. Her message to us….don’t give up! Don’t give up. There will be days and times of discouragement, but don’t give up. There will be moments when no one else understands what you are going through, but don’t give up.
So, refreshed, recharged and optimistic we go to bed tonight. Thankful for how far Kevin has come so far and excited to see what God will do through him as we go on this journey. Thanks for reading and caring. It means so much to our family.
Thanks,
Matt, Angie and family
_______________________________
Pray For Kevin
http://www.prayforkevin.com/
follow on twitter: pray4kevin
facebook: Pray for Kevin
Wednesday, April 7, 2010
Update #120 on Kevin
Last week, we took Kevin to his gastroenterologist. This is the same doctor that put his peg tube in his stomach on September 4th, 2009. This is the first time this doctor has seen Kevin since that day. He came in the room all smiles and greeting us with “How y’all doin?” I remembered that he was overly friendly when we met last September. He also gave us his card and said, call me anytime if you have questions. He repeated that plea this time as well. He told us that whoever is taking care of Kevin’s peg tube stoma (hole for feeding tube) is doing a superb job. He didn’t want to change anything, saying you can’t fix perfection. We left feeling really good with the reminder that we must be doing some things right!
We also realized last week that we have now been at home with Kevin longer than we were at Meadowbrook. What????? That sounds as crazy in my head as when we realized it. It seems like we were at Meadowbrook for a lot longer than we have been at home. Part of it is because we had to get renewed each week with insurance and the doctors at Meadowbrook. Another reason is that it was newer, or rather more raw to deal with. Also, we were constantly running, either to pick people up, or from hotel to the hospital, the house we stayed at to the hospital, etc…. During that time, we also visited thirteen different skilled nursing centers which added to the stress. If you’ll remember there had been the flood at Kevin’s house, which consumed a portion of our time too. Things have started to settle more and more. Now we are getting used to the new normal.
The end of March saw the end of the medical furlough that Angie and I were on from our ministry in Italy. After much prayer, consultation and thought, we came to the conclusion that it would be God honoring to stay in the states and care for Kevin and his kids. So, we transitioned out of our role on the team in Verona to a stateside role with our mission organization, Team Expansion. I am now part of the Creative Arts department of our mission. I will actually be doing many things that I have done for the past eleven years, but now my talents will be made available to any of our organization’s 320 missionaries on the field. I have done and will do graphics, video editing, web designing, publishing, curriculum creation as well as other creative projects. I will be doing half my hours at a borrowed office at Highland Park Christian Church, and the other half during my night shifts with Kevin. This is still a position where we have to raise all of our support. This is the practice for everyone within our organization. We have updates and prayer updates for our role in missions. If you would like to receive this, please let me know and I’ll add you on. Email me at mcrosser@teamexpansion.org.
Kevin finished one of his antibiotics and the other finishes tomorrow. He is coughing much less and producing less secretions. We continue to take him outside several days of the week and on Easter we took him over to my brother, Greg’s, house. We took him outside, so he could watch us hide and find Easter eggs with the kids. Then inside we let him smell the Easter lunch for brain stimulation. We got him back home after about four hours and we didn’t have to suction him even once.
Thanks as always for reading this, caring for our family and praying for Kevin’s recovery.
Thanks,
Matt, Angie and family
_______________________________
Pray For Kevin
http://www.prayforkevin.com/
follow on twitter: pray4kevin
facebook: Pray for Kevin
We also realized last week that we have now been at home with Kevin longer than we were at Meadowbrook. What????? That sounds as crazy in my head as when we realized it. It seems like we were at Meadowbrook for a lot longer than we have been at home. Part of it is because we had to get renewed each week with insurance and the doctors at Meadowbrook. Another reason is that it was newer, or rather more raw to deal with. Also, we were constantly running, either to pick people up, or from hotel to the hospital, the house we stayed at to the hospital, etc…. During that time, we also visited thirteen different skilled nursing centers which added to the stress. If you’ll remember there had been the flood at Kevin’s house, which consumed a portion of our time too. Things have started to settle more and more. Now we are getting used to the new normal.
The end of March saw the end of the medical furlough that Angie and I were on from our ministry in Italy. After much prayer, consultation and thought, we came to the conclusion that it would be God honoring to stay in the states and care for Kevin and his kids. So, we transitioned out of our role on the team in Verona to a stateside role with our mission organization, Team Expansion. I am now part of the Creative Arts department of our mission. I will actually be doing many things that I have done for the past eleven years, but now my talents will be made available to any of our organization’s 320 missionaries on the field. I have done and will do graphics, video editing, web designing, publishing, curriculum creation as well as other creative projects. I will be doing half my hours at a borrowed office at Highland Park Christian Church, and the other half during my night shifts with Kevin. This is still a position where we have to raise all of our support. This is the practice for everyone within our organization. We have updates and prayer updates for our role in missions. If you would like to receive this, please let me know and I’ll add you on. Email me at mcrosser@teamexpansion.org.
Kevin finished one of his antibiotics and the other finishes tomorrow. He is coughing much less and producing less secretions. We continue to take him outside several days of the week and on Easter we took him over to my brother, Greg’s, house. We took him outside, so he could watch us hide and find Easter eggs with the kids. Then inside we let him smell the Easter lunch for brain stimulation. We got him back home after about four hours and we didn’t have to suction him even once.
Thanks as always for reading this, caring for our family and praying for Kevin’s recovery.
Thanks,
Matt, Angie and family
_______________________________
Pray For Kevin
http://www.prayforkevin.com/
follow on twitter: pray4kevin
facebook: Pray for Kevin
Thursday, March 25, 2010
Update #119 on Kevin
Kevin has been improving since going to the pulmonologist. She put him on a couple antibiotics due to two strands of pseudomonas (which he had at the hospital so this is a flare up) and moraxella catarrhalis (this is a common bacteria that causes sinus infections, bronchitis and pneumonia). He has been steadily improving in the past week and a half. He has been on the antibiotics for about six days and is supposed to be on them until the tenth day.
We have been taking Kevin outside in his wheelchair, when it is not snowing or storming (Oklahoma weather is amazing – in one week period rain, snow and sunny days in the 70s). We also were able to take another field trip. This time we packed up Kevin’s gear, loaded him in the van and went to my brother Greg’s house. It was on a late Sunday afternoon and Kevin did great. We only had to suction him a few times and we were there for about four hours. He was in his chair for about five hours. The family has thought about other field trips Kevin could go on, parks, movies (later) and maybe other places he is familiar with. That was one of the things that was good about going to Greg’s house, it was familiar. You are probably saying, but wait he is in his own house! Aha….remember the flood in Kevin’s house?? It ruined enough furniture and things that many of the rooms, while the same shape, are very different.
In the past week, Kevin has kind of popped open his eyes, staring off at the room and seeming to be anxious, like he doesn’t know where he is. Family members have taken the opportunity to soothe him and tell him he is at home and his body language calms down.
Today (Wednesday, March 24) we took Kevin to his general doctor. Can I just say how blessed we feel to have the doctors caring for Kevin that we have? They really are amazing. His doctor today said we were doing a great job with Kevin at home, that everyone in the office commented that they thought Kevin was looking better and they were excited to see Kevin roll in the office sitting in his chair as opposed to an ambulance gurney. His doctor took her time with Kevin and us, examining him and answering questions that we had. She also ended up giving him an allergy shot, since Kevin used to get those on a semi-regular basis. Maybe that will also help with his secretions.
I am flying out of town overnight from Thursday to Friday this week. Please pray for the family skeleton crew while I am gone, stepping up and filling holes. Please pray for wisdom as we make decisions for Kevin. Please pray for joy as we go through an incredible situation. Please pray for steadfastness and we trust in God to carry through these times of trial. And especially pray for Kevin as he heals, progress and goes through this monumental ordeal.
Thanks for reading, praying and caring,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
We have been taking Kevin outside in his wheelchair, when it is not snowing or storming (Oklahoma weather is amazing – in one week period rain, snow and sunny days in the 70s). We also were able to take another field trip. This time we packed up Kevin’s gear, loaded him in the van and went to my brother Greg’s house. It was on a late Sunday afternoon and Kevin did great. We only had to suction him a few times and we were there for about four hours. He was in his chair for about five hours. The family has thought about other field trips Kevin could go on, parks, movies (later) and maybe other places he is familiar with. That was one of the things that was good about going to Greg’s house, it was familiar. You are probably saying, but wait he is in his own house! Aha….remember the flood in Kevin’s house?? It ruined enough furniture and things that many of the rooms, while the same shape, are very different.
In the past week, Kevin has kind of popped open his eyes, staring off at the room and seeming to be anxious, like he doesn’t know where he is. Family members have taken the opportunity to soothe him and tell him he is at home and his body language calms down.
Today (Wednesday, March 24) we took Kevin to his general doctor. Can I just say how blessed we feel to have the doctors caring for Kevin that we have? They really are amazing. His doctor today said we were doing a great job with Kevin at home, that everyone in the office commented that they thought Kevin was looking better and they were excited to see Kevin roll in the office sitting in his chair as opposed to an ambulance gurney. His doctor took her time with Kevin and us, examining him and answering questions that we had. She also ended up giving him an allergy shot, since Kevin used to get those on a semi-regular basis. Maybe that will also help with his secretions.
I am flying out of town overnight from Thursday to Friday this week. Please pray for the family skeleton crew while I am gone, stepping up and filling holes. Please pray for wisdom as we make decisions for Kevin. Please pray for joy as we go through an incredible situation. Please pray for steadfastness and we trust in God to carry through these times of trial. And especially pray for Kevin as he heals, progress and goes through this monumental ordeal.
Thanks for reading, praying and caring,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Sunday, March 14, 2010
Update #118 on Kevin
So, in a couple days, Kevin will have been home for three months. After almost four months an answered prayer arrived at Kevin’s house….his wheelchair. It is really nice, and a much better fit than the “one-size-fits-all” geri-chair. We are glad to get rid of it. We’re calling the medical supply rental company to pick it up this week.
After a week of helping us get used to using the new wheelchair, our two therapists discharged Kevin. He is progressing, but not fast enough for them to stay on right now. They cannot do anything more than they have taught us at this point. As Kevin continues to progress they may be able to return. Kevin had much trauma to his brain, therefore we have to wait for his brain to catch up to his body in healing. He doesn’t have major spasms anymore, he stretches out when awakened, starting to stabilize his head more and more, and able to cough out most normal secretions.
Last week, Kevin had some sort of cold that was making his secretions worse. That meant we had to suction him more than normal. He is finally starting to get over it, so he can get back to his normal healing rate.
With the wheelchair comes new freedom for Kevin. The first couple days we started to take him around the house and see things like his new kitchen that was built for him. Every once in awhile, as we pointed out different things in the kitchen, he would turn his head in that direction! We were happy he was alert for the tour.
Another freedom is taking Kevin outside. Once the weather warms up a little and stops raining, we can take him outside.
When Kevin has doctor visits, he no longer needs the assistance of EMSA (ambulatory services) to come and pick him up. Family friends have a lift equipped van and have graciously offered the use of it whenever we want. Friday was the maiden trip and we took him to his pulmonologist. Angie and I, along with our nurse, loaded Kevin up and went to the doctor’s office, then to another location to get an X-ray, finally grabbing some fast food for lunch before heading home. It worked out so well. We are looking forward to our next “field trip”.
The lung doctor remarked that Kevin continues to look better. This doctor has been seeing him since September. She said every time she sees Kevin he looks better to her. She changed out Kevin’s trach, causing some bleeding, but not as much as last time.
Today, Saturday March 13th, was the last day of our previously approved nursing. We found out on Friday, that Kevin was approved again for another four weeks of nursing, putting the next end date at April 11th. One of our main nurses had to take some emergency family time off, and a new nurse started last week. She has done a really good job and cares for Kevin very much. Kevin has been blessed to have the quality of nursing that he has had at home. We are so thankful.
Thanks to those who have brought over a couple meals, it was such a big help and tasty too!
If anyone has a standing “A” frame lying around their house, we might be able to put it to good use. I believe it might have to have some specifics, but other than that they are made to fit various sizes of people.
Thanks so much for your prayers. Thank you for praying even when we don’t report. Thanks for thinking of us and sending cards, calling or coming by. It helps it not be so lonely and gives Kevin some new stimulation. He’s probably had just about enough of me and the rest of the family!
-Matt, Angie and family
_______________________________
Website: http://www.prayforkevin.com/
Twitter: http://twitter.com/pray4kevin
Facebook: http://www.facebook.com/group.php?gid=140853109176
After a week of helping us get used to using the new wheelchair, our two therapists discharged Kevin. He is progressing, but not fast enough for them to stay on right now. They cannot do anything more than they have taught us at this point. As Kevin continues to progress they may be able to return. Kevin had much trauma to his brain, therefore we have to wait for his brain to catch up to his body in healing. He doesn’t have major spasms anymore, he stretches out when awakened, starting to stabilize his head more and more, and able to cough out most normal secretions.
Last week, Kevin had some sort of cold that was making his secretions worse. That meant we had to suction him more than normal. He is finally starting to get over it, so he can get back to his normal healing rate.
With the wheelchair comes new freedom for Kevin. The first couple days we started to take him around the house and see things like his new kitchen that was built for him. Every once in awhile, as we pointed out different things in the kitchen, he would turn his head in that direction! We were happy he was alert for the tour.
Another freedom is taking Kevin outside. Once the weather warms up a little and stops raining, we can take him outside.
When Kevin has doctor visits, he no longer needs the assistance of EMSA (ambulatory services) to come and pick him up. Family friends have a lift equipped van and have graciously offered the use of it whenever we want. Friday was the maiden trip and we took him to his pulmonologist. Angie and I, along with our nurse, loaded Kevin up and went to the doctor’s office, then to another location to get an X-ray, finally grabbing some fast food for lunch before heading home. It worked out so well. We are looking forward to our next “field trip”.
The lung doctor remarked that Kevin continues to look better. This doctor has been seeing him since September. She said every time she sees Kevin he looks better to her. She changed out Kevin’s trach, causing some bleeding, but not as much as last time.
Today, Saturday March 13th, was the last day of our previously approved nursing. We found out on Friday, that Kevin was approved again for another four weeks of nursing, putting the next end date at April 11th. One of our main nurses had to take some emergency family time off, and a new nurse started last week. She has done a really good job and cares for Kevin very much. Kevin has been blessed to have the quality of nursing that he has had at home. We are so thankful.
Thanks to those who have brought over a couple meals, it was such a big help and tasty too!
If anyone has a standing “A” frame lying around their house, we might be able to put it to good use. I believe it might have to have some specifics, but other than that they are made to fit various sizes of people.
Thanks so much for your prayers. Thank you for praying even when we don’t report. Thanks for thinking of us and sending cards, calling or coming by. It helps it not be so lonely and gives Kevin some new stimulation. He’s probably had just about enough of me and the rest of the family!
-Matt, Angie and family
_______________________________
Website: http://www.prayforkevin.com/
Twitter: http://twitter.com/pray4kevin
Facebook: http://www.facebook.com/group.php?gid=140853109176
Wednesday, February 17, 2010
Update #117 on Kevin
I currently have a beard. I know, I know, you’re thinking…it’s been this long and he’s writing about facial hair? Hang with me, I’m going somewhere here. I don’t always have a full beard, but in certain times in my life, I have grown one. There have also been times where I grew it just because, but most often I have grown one when something big and difficult is going on in our lives. I don’t think I have ever told anyone this before. It’s like my own little nazarite vow with God. I’m not pledging anything to God by growing, except maybe allegiance to Him. It’s the idea that I can relax and let Him be God and take care of not only me, but with any situation that I am confronted.
Kevin’s been home at his house for two months. While these have been some very stressful months, they have also been very good months. How do you find goodness in a difficult situation? Well, I do think it is very difficult, if not impossible to do this without God. Relaxing in Him, and letting God be the one responsible is the ideal, which is the daily struggle. We don’t always relax, in fact often we worry and fear and cry and get angry, yet it the times we do trust and truly relax in Him are the best times. Those are the times that we yearn for.
Since the last update, we have had nursing approved twice for two week periods. Last Friday, we got approval for one month of eight hours per day nursing. This goes until March 13, 2010. We will request more as that date approaches. We have one main nurse five days per week and another nurse here on the other two days. They are both answers to prayer for Kevin, as is actually having the nursing at all.
Physical and Occupational therapists have both continued coming helping see where Kevin’s limits are with the tasks that he is able to endure. Sitting assisted on the edge of the bed has increased from a 20 minute activity to as long as 65 minutes. This tasks is actually limited by those of us taking turns to assist Kevin. Several professionals have indicated that Kevin might benefit from a communication board. This would be something that Kevin could look at and respond to our questions since he is still not communicating verbally. He could look at a certain picture to answer yes or no, or something of that effect. We are hoping that we can find the right Speech Therapist to work with Kevin.
We were able, thanks to those of you who responded, to fix the house needs in order to reinstate Kevin’s new home insurance.
After three months of struggling with Kevin’s medical insurance, they finally approved Kevin’s wheelchair. It should be here by the weekend. With it we can do all sorts of new stimulation from taking him outside to positioning in the chair and field trips.
Today, we took Kevin to his pulmonologist (lung doctor). She was one of Kevin’s pulmonologists at Meadorbrook. She thought Kevin looked very well cared for as well as looking more alert than the last time she saw him. She gave us a great deal of time and attention as well as changing out Kevin’s trach tube right there in her office. She wanted to do it now, since it had been a little longer than you would normally want to leave the same one in. He has had this one the entire time he has been home, plus a week or so prior. It went really smoothly, except that taking it out caused bleeding. Apparently, the longer a trach tube is in (and not changed out) makes it more possible for the skin around it to attach. She remained calm and took care of Kevin’s bleeding. After stopping the bleeding, she said we might see more blood get coughed out in the next 24 hours. He coughed a little after we got back home, but all night so far (from 11pm to 4am) he has only coughed once.
She also changed out Kevin’s trach to one that would make it easier to cap and allow him the opportunity to make vocal sounds when possible. This means now we have to clean out the inner part of his trach tube rather than inserting disposable ones.
Thanks to those of you who have brought lunch or dinner by for our family. It has been extremely helpful. Also, thanks again for all your prayers, we appreciate them tremendously.
Thanks,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Kevin’s been home at his house for two months. While these have been some very stressful months, they have also been very good months. How do you find goodness in a difficult situation? Well, I do think it is very difficult, if not impossible to do this without God. Relaxing in Him, and letting God be the one responsible is the ideal, which is the daily struggle. We don’t always relax, in fact often we worry and fear and cry and get angry, yet it the times we do trust and truly relax in Him are the best times. Those are the times that we yearn for.
Since the last update, we have had nursing approved twice for two week periods. Last Friday, we got approval for one month of eight hours per day nursing. This goes until March 13, 2010. We will request more as that date approaches. We have one main nurse five days per week and another nurse here on the other two days. They are both answers to prayer for Kevin, as is actually having the nursing at all.
Physical and Occupational therapists have both continued coming helping see where Kevin’s limits are with the tasks that he is able to endure. Sitting assisted on the edge of the bed has increased from a 20 minute activity to as long as 65 minutes. This tasks is actually limited by those of us taking turns to assist Kevin. Several professionals have indicated that Kevin might benefit from a communication board. This would be something that Kevin could look at and respond to our questions since he is still not communicating verbally. He could look at a certain picture to answer yes or no, or something of that effect. We are hoping that we can find the right Speech Therapist to work with Kevin.
We were able, thanks to those of you who responded, to fix the house needs in order to reinstate Kevin’s new home insurance.
After three months of struggling with Kevin’s medical insurance, they finally approved Kevin’s wheelchair. It should be here by the weekend. With it we can do all sorts of new stimulation from taking him outside to positioning in the chair and field trips.
Today, we took Kevin to his pulmonologist (lung doctor). She was one of Kevin’s pulmonologists at Meadorbrook. She thought Kevin looked very well cared for as well as looking more alert than the last time she saw him. She gave us a great deal of time and attention as well as changing out Kevin’s trach tube right there in her office. She wanted to do it now, since it had been a little longer than you would normally want to leave the same one in. He has had this one the entire time he has been home, plus a week or so prior. It went really smoothly, except that taking it out caused bleeding. Apparently, the longer a trach tube is in (and not changed out) makes it more possible for the skin around it to attach. She remained calm and took care of Kevin’s bleeding. After stopping the bleeding, she said we might see more blood get coughed out in the next 24 hours. He coughed a little after we got back home, but all night so far (from 11pm to 4am) he has only coughed once.
She also changed out Kevin’s trach to one that would make it easier to cap and allow him the opportunity to make vocal sounds when possible. This means now we have to clean out the inner part of his trach tube rather than inserting disposable ones.
Thanks to those of you who have brought lunch or dinner by for our family. It has been extremely helpful. Also, thanks again for all your prayers, we appreciate them tremendously.
Thanks,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Wednesday, January 20, 2010
Update #116 on Kevin
Here I sit in the dark on my night shift with Kevin. His room is the living room and I have crashed on the couch. Angie will relieve me at 5 AM and I’ll head to bed for a bit. Kevin has been coughing a little more the last few days, but not too much tonight. Last Saturday, Kevin has been home a month. Five months ago today was Kevin’s accident. We knew the odds were up against him those first few days and weeks, so to think we are here with him, five months later is pretty amazing.
Last week, we asked you to pray about the peer to peer doctor phone call. Basically, the result was that Kevin got approved for another two weeks of eight hours per day nursing. It may end then or we may be able to get more extensions, we don’t know, but God does.
During the past several days Kevin has done some really cool stuff. I’ve told you about using the Wii and PS3 for therapy and coma stimulation with Kevin. Well, last week Kevin was pushing the button with his thumb a few times and trying a few more, it seemed difficult for him to push it all the way. He has done this a couple times now. One of those times, Kevin’s nurse asked Kevin to squeeze his hand if he wanted to keep playing. Then he asked him to not squeeze if he wanted to stop and rest. Then he reversed the question. Squeeze the nurse’s hand if he wanted to stop and rest and don’t squeeze if Kevin wanted to keep playing. He squeezed consistently to keep playing, even though his eyes were drooping and looked tired!
Then that night, we had Kevin in the geri-chair. Our mom was there and she was sitting behind him to his right. The TV was on the wall in front of him and turned on. Angie asked Kevin if he wanted to turn around to see his mom to squeeze her hand. He did. Then she asked him to squeeze her hands if he wanted to stay where he was and watch the TV. He didn’t squeeze. She asked him again and he consistently responded to the questions.
Every two hours we need to adjust Kevin’s body position in bed. This is called ‘turning’ him. I have to do this in about fifteen minutes in fact. But last Saturday night, I went to turn Kevin to his left and told him so as I came to the bed. I hesitated because I was making sure that I had everything in place before Kevin in an uncomfortable transition position. As I hesitated, Kevin’s body tightened up, it seemed every muscle was working over-time and he rolled to the left. Every other time, when Kevin has contracted his muscles he stays right where he is making it harder for us to turn him. I was so surprised and I told him thanks for saving my back from turning him!
Physical and Occupational therapy each continue to come twice weekly. They are great encouragement and have helped us do new things with Kevin for building muscle back up in different areas of his body. While OT was here today we were having Kevin do different motions with his hands in a pattern across his body. These motions not only help keep Kevin’s joints looser, but also stimulate his memory of doing these type actions in the past. For example, we took and empty spoon in his hand and made the gesture of ‘getting’ something off a plate and lifting it to his mouth. We know Kevin loves Cool Whip and we had some, so we even tried a little Cool Whip to his lips. He didn’t really respond while OT was here, but then after she left, we put a small amount inside his mouth to taste. He began moving his tongue around and chewing! We have also done BBQ sauce and frosting so far, maybe others.
Due to the bathroom flood that caused water damage in Kevin’s house, his home insurance cancelled his policy. We searched for another insurance company and thought we found one, but when they did the inspection they told us about a couple outdoor repairs that needed done or the new policy would be cancelled too. If you would be able to repair the roof over Kevin’s front porch, would you let us know? Unfortunately, we are in a time crunch too, but this would be a great way for someone to help Kevin during his recovery. Email me or call for more details (Matt – 918-850-9828 after 11AM thanks).
Today, Kevin watched some Star Trek (the original series) while he was sitting up in his chair. We have been playing some Old West audio books by Louis L’amour (his favorite) for him during the morning. In rest times, we dim the lights and play soft music or no music at all.
Keep praying for Kevin’s insurance to continue nursing. Keep praying for Kevin’s progress. Keep praying for our family’s unity and sanity. We thank God for everything that He has done so far and trust that He will continue to care for Kevin and our family.
Thanks for reading and praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Last week, we asked you to pray about the peer to peer doctor phone call. Basically, the result was that Kevin got approved for another two weeks of eight hours per day nursing. It may end then or we may be able to get more extensions, we don’t know, but God does.
During the past several days Kevin has done some really cool stuff. I’ve told you about using the Wii and PS3 for therapy and coma stimulation with Kevin. Well, last week Kevin was pushing the button with his thumb a few times and trying a few more, it seemed difficult for him to push it all the way. He has done this a couple times now. One of those times, Kevin’s nurse asked Kevin to squeeze his hand if he wanted to keep playing. Then he asked him to not squeeze if he wanted to stop and rest. Then he reversed the question. Squeeze the nurse’s hand if he wanted to stop and rest and don’t squeeze if Kevin wanted to keep playing. He squeezed consistently to keep playing, even though his eyes were drooping and looked tired!
Then that night, we had Kevin in the geri-chair. Our mom was there and she was sitting behind him to his right. The TV was on the wall in front of him and turned on. Angie asked Kevin if he wanted to turn around to see his mom to squeeze her hand. He did. Then she asked him to squeeze her hands if he wanted to stay where he was and watch the TV. He didn’t squeeze. She asked him again and he consistently responded to the questions.
Every two hours we need to adjust Kevin’s body position in bed. This is called ‘turning’ him. I have to do this in about fifteen minutes in fact. But last Saturday night, I went to turn Kevin to his left and told him so as I came to the bed. I hesitated because I was making sure that I had everything in place before Kevin in an uncomfortable transition position. As I hesitated, Kevin’s body tightened up, it seemed every muscle was working over-time and he rolled to the left. Every other time, when Kevin has contracted his muscles he stays right where he is making it harder for us to turn him. I was so surprised and I told him thanks for saving my back from turning him!
Physical and Occupational therapy each continue to come twice weekly. They are great encouragement and have helped us do new things with Kevin for building muscle back up in different areas of his body. While OT was here today we were having Kevin do different motions with his hands in a pattern across his body. These motions not only help keep Kevin’s joints looser, but also stimulate his memory of doing these type actions in the past. For example, we took and empty spoon in his hand and made the gesture of ‘getting’ something off a plate and lifting it to his mouth. We know Kevin loves Cool Whip and we had some, so we even tried a little Cool Whip to his lips. He didn’t really respond while OT was here, but then after she left, we put a small amount inside his mouth to taste. He began moving his tongue around and chewing! We have also done BBQ sauce and frosting so far, maybe others.
Due to the bathroom flood that caused water damage in Kevin’s house, his home insurance cancelled his policy. We searched for another insurance company and thought we found one, but when they did the inspection they told us about a couple outdoor repairs that needed done or the new policy would be cancelled too. If you would be able to repair the roof over Kevin’s front porch, would you let us know? Unfortunately, we are in a time crunch too, but this would be a great way for someone to help Kevin during his recovery. Email me or call for more details (Matt – 918-850-9828 after 11AM thanks).
Today, Kevin watched some Star Trek (the original series) while he was sitting up in his chair. We have been playing some Old West audio books by Louis L’amour (his favorite) for him during the morning. In rest times, we dim the lights and play soft music or no music at all.
Keep praying for Kevin’s insurance to continue nursing. Keep praying for Kevin’s progress. Keep praying for our family’s unity and sanity. We thank God for everything that He has done so far and trust that He will continue to care for Kevin and our family.
Thanks for reading and praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Thursday, January 14, 2010
Update #115 on Kevin: PRAY AT 1 PM TODAY!'
**** Read ahead to the asterisk for a major prayer request for today at 1 PM!!! ****
Well, both doctor’s appointments went really well. The first appointment on Tuesday was with Kevin’s new primary care physician. First, three paramedics arrived at Kevin’s house (normally there are only two). We didn’t know if they would be staying with us at the doctor’s office or not, so we took a full page list of needed supplies and equipment. Angie, Greg and myself, accompanied by the main nurse that Kevin has had at home, all followed EMSA to the doctor’s office. While in the waiting room, Kevin started coughing and producing at the same time. As we were surrounded by professionals, it was Angie and I that got Kevin’s portable suction out and got to clearing Kevin’s airway. Fortunately his nurse was there too, since he helped us figure out why the portable suction wasn’t suctioning!
Once in the doctor’s office, we filled out paperwork and waited for the doc. The paramedics waited in the stayed in the waiting room and the three of us plus Kevin’s nurse awaited the doctor. She came in and asked many questions and examined him. She said there was more to Kevin’s case than she realized or she would have planned more time this first visit with him. She would go over all the pertinent medical documentation and call us with questions. She said although it was a major undertaking to care for Kevin, we were doing a great job! She also told us that Kevin needed round the clock nursing. She looked over Kevin’s meds and even changed one from Prevacid to Prilosec after discussing it with us.
This week, with physical and occupational therapists coming every other day, we have been getting Kevin up on the side of the bed in a sitting position with a few of us surrounding him, but only one of us supporting him. Yesterday he increased his time from twenty minutes to twenty-five. Some days, we think he could outlast us.
Last night, while doing some therapy on the Nintendo Wii, Kevin was pressing the button a few times! This was really cool, the family that was there all saw it as well as the nurse to document it. In the past week and a half we have also been using some video game drums to give him a taste of his old drumming skills. We put the sticks in his hands and help him keep the beat to the game’s music.
Today, the paramedics arrived real early to take Kevin to the eye doctor. We got him back home before the actual time of his appointment! The eye doctor thought we were doing great with Kevin’s eye. He said it was looking really good. We are to continue with the eye lubrication and Kevin is supposed to come back in three to four months.
**** Special Prayer Request at 1 PM Today ****
Today, an ambitious request for nursing was denied. We are in fact only approved for nursing through today! The next step is for a peer to peer phone meeting. This is between Kevin’s new primary care physician and the medical director at Kevin’s insurance. This phone call takes place at 1 PM on January 14th (Today!!). Please pray that Kevin’s needs are met in regard to nursing. Pray that God would supply everything that the family needs to care adequately for Kevin.
Thanks for reading and praying for Kevin and us!
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Well, both doctor’s appointments went really well. The first appointment on Tuesday was with Kevin’s new primary care physician. First, three paramedics arrived at Kevin’s house (normally there are only two). We didn’t know if they would be staying with us at the doctor’s office or not, so we took a full page list of needed supplies and equipment. Angie, Greg and myself, accompanied by the main nurse that Kevin has had at home, all followed EMSA to the doctor’s office. While in the waiting room, Kevin started coughing and producing at the same time. As we were surrounded by professionals, it was Angie and I that got Kevin’s portable suction out and got to clearing Kevin’s airway. Fortunately his nurse was there too, since he helped us figure out why the portable suction wasn’t suctioning!
Once in the doctor’s office, we filled out paperwork and waited for the doc. The paramedics waited in the stayed in the waiting room and the three of us plus Kevin’s nurse awaited the doctor. She came in and asked many questions and examined him. She said there was more to Kevin’s case than she realized or she would have planned more time this first visit with him. She would go over all the pertinent medical documentation and call us with questions. She said although it was a major undertaking to care for Kevin, we were doing a great job! She also told us that Kevin needed round the clock nursing. She looked over Kevin’s meds and even changed one from Prevacid to Prilosec after discussing it with us.
This week, with physical and occupational therapists coming every other day, we have been getting Kevin up on the side of the bed in a sitting position with a few of us surrounding him, but only one of us supporting him. Yesterday he increased his time from twenty minutes to twenty-five. Some days, we think he could outlast us.
Last night, while doing some therapy on the Nintendo Wii, Kevin was pressing the button a few times! This was really cool, the family that was there all saw it as well as the nurse to document it. In the past week and a half we have also been using some video game drums to give him a taste of his old drumming skills. We put the sticks in his hands and help him keep the beat to the game’s music.
Today, the paramedics arrived real early to take Kevin to the eye doctor. We got him back home before the actual time of his appointment! The eye doctor thought we were doing great with Kevin’s eye. He said it was looking really good. We are to continue with the eye lubrication and Kevin is supposed to come back in three to four months.
**** Special Prayer Request at 1 PM Today ****
Today, an ambitious request for nursing was denied. We are in fact only approved for nursing through today! The next step is for a peer to peer phone meeting. This is between Kevin’s new primary care physician and the medical director at Kevin’s insurance. This phone call takes place at 1 PM on January 14th (Today!!). Please pray that Kevin’s needs are met in regard to nursing. Pray that God would supply everything that the family needs to care adequately for Kevin.
Thanks for reading and praying for Kevin and us!
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Tuesday, January 12, 2010
Update #114 on Kevin
Today we are going to a doctor. This is the first primary care doctor to agree to see Kevin, so we have mixed emotions. We are happy to finally have a doctor agree to see Kevin, but we don’t want just any warm body taking on Kevin’s case. We have heard some good things about Dr. Ting, so we are hopeful. Also, even though the agreement when we left Meadowbrook was to have the clinic that his doctor at Meadowbrook is associated with be his interim care clinic, he has not really wanted to fulfill that role. Would you pray that if this is to be Kevin’s doctor that it would be clear?
Kevin has been continuing to improve, slowly. He is opening his mouth at times very wide when asked to do oral care (brushing, etc….). He is opening wider in some cases much more than before. He is also been doing well with Physical and Occupational therapy. They have been sitting Kevin up on the edge of the bed for twenty minutes. They have done this three times, including us in the process to teach us at the same time.
Thursday, we have an appointment with the eye doctor. It is a follow up for Kevin’s right eye. It hasn’t gotten any worse, but it hasn’t gotten much better either. We’ll see what he says.
Both appointments have to be accomplished with ambulatory transport (EMSA). This is because the paperwork for Kevin’s wheelchair got sent to the wrong department at his insurance for the first month and a half. Now, that it is finally at the right hands, we hope to get authorization soon, or insurance will have to approve another transport to the pulmonologist and neurologist (when we find one).
Our nursing schedule ends this Thursday. We are in the process of requesting more time. We hope to hear soon if we have it after Thursday or for how long.
We are trying to find a home healthcare pharmacy, such as Freeland Brown in Tulsa, but that is in Kevin’s insurance’s network. We need things such as 4 in by 4 in drain sponges that his DME company (Durable Medical Equipment – supplies bed, respiratory, etc……) does not carry any longer and that we need for Kevin’s trach care.
Yesterday, I cut Kevin’s hair. I have been cutting my own hair for fourteen years now and every time that Kevin would see me cutting my hair he would ask me to cut his. Sometimes I had time, sometimes I didn’t. But I made time yesterday and cut it the way he likes it and has worn it for awhile.
Well, I am going to finish getting ready. We will be leaving for the doctor when EMSA gets here in the next thirty minutes or so.
Thanks for reading and especially praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Kevin has been continuing to improve, slowly. He is opening his mouth at times very wide when asked to do oral care (brushing, etc….). He is opening wider in some cases much more than before. He is also been doing well with Physical and Occupational therapy. They have been sitting Kevin up on the edge of the bed for twenty minutes. They have done this three times, including us in the process to teach us at the same time.
Thursday, we have an appointment with the eye doctor. It is a follow up for Kevin’s right eye. It hasn’t gotten any worse, but it hasn’t gotten much better either. We’ll see what he says.
Both appointments have to be accomplished with ambulatory transport (EMSA). This is because the paperwork for Kevin’s wheelchair got sent to the wrong department at his insurance for the first month and a half. Now, that it is finally at the right hands, we hope to get authorization soon, or insurance will have to approve another transport to the pulmonologist and neurologist (when we find one).
Our nursing schedule ends this Thursday. We are in the process of requesting more time. We hope to hear soon if we have it after Thursday or for how long.
We are trying to find a home healthcare pharmacy, such as Freeland Brown in Tulsa, but that is in Kevin’s insurance’s network. We need things such as 4 in by 4 in drain sponges that his DME company (Durable Medical Equipment – supplies bed, respiratory, etc……) does not carry any longer and that we need for Kevin’s trach care.
Yesterday, I cut Kevin’s hair. I have been cutting my own hair for fourteen years now and every time that Kevin would see me cutting my hair he would ask me to cut his. Sometimes I had time, sometimes I didn’t. But I made time yesterday and cut it the way he likes it and has worn it for awhile.
Well, I am going to finish getting ready. We will be leaving for the doctor when EMSA gets here in the next thirty minutes or so.
Thanks for reading and especially praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Sunday, January 3, 2010
Update #113 on Kevin
It is not a surprise that many of you are still praying for Kevin and our family. In the last couple weeks we have ridden the full gamut of emotions. Angie and I had a great anniversary on December 21st. Kohl’s car broke down (needs a new engine), so the car we are borrowing has become the only car for this temporary household of five (including Kevin, even though he isn’t going anywhere, errands for supplies have to be run for him most of all). The snowstorm came and shut us in and keeping other family members from being here to help.
Christmas Eve and Christmas Day with no nurses, but we had a great Christmas here at the house snowed in. Kevin got audio books, stocking caps (OU and TU), earphones (for listening to music and books on an MP3 player) and more. We also found out we got another week of eight hours per day of nursing. After a few days of us taking care of Kevin, then a nurse coming for a few days, the snow relented and other family members were able to come around again to help. On December 31st, we found out that another two weeks were approved for eight hours per day of nursing. After that, who knows. Last week, physical, occupational and speech therapists all paid visits to assess Kevin and determine plans for treatment.
Kevin seems to have made the adjustment home really well. He has been off oxygen completely after some conflicting orders were sent home with him. We had a pulsox, blood pressure reader, and stethoscope donated so we have the vital reading equipment set up. When we put eye ointment in his right eye, we also check to see if he needs cleaned, and check his pulsox readings at the same time. Kevin usually has a O2 saturation of 96 and above. Sometimes it is closer to 93, but that is still good.
For the first week he was home, Kevin didn’t seem to have the extended periods of alertness he had been having in the hospital. Around mid-last week Kevin started having them once more and has had several periods of alertness since. In fact, Kevin seems pretty alert just now, after putting in his eye ointment, turning him on his right and checking his vitals (95% O2 and 91-94 HR). In an hour, he gets some reglan and a breathing treatment. In two hours, he gets fed and then turned towards his left. At that point he will be pretty settled and I will go to sleep on the couch for a couple hours, get up check him, put in eye ointment, then turn him to his right again. It will go like that until Angie relieves me at 5 AM. While we have been having almost daily nursing it has gone okay, but at times it has felt like we are at the breaking point…..yeah already. But most of the time it seems to work out. We will continue requesting nurses from Kevin’s insurance to keep Kevin out of the hospital and last week we came up with more plans to progress Kevin’s condition.
One of the things we do is have him help us when we do daily tasks for him. Wrap his hand around the toothbrush and use his hand to do the brushing. Rub his fingers through his hair before we put gel in it. Use his hand to grasp the rag to clean his face and body. These monotonous tasks could be what triggers something in his conscious. They also told us to sing over learned songs to him, such as Happy Birthday and the alphabet. We might try Jesus Loves Me too!
Today, Angie stayed home with Kevin, while the rest of us went to church. They watched a sermon online, which is hooked up to the TV. We had a couple visitors today and a few others since Kevin came home…that’s been nice. It’s good for Kevin and good for us.
Thanks for your prayers. Thanks for your concern. Thanks for the love that you have shown us during this trial.
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Christmas Eve and Christmas Day with no nurses, but we had a great Christmas here at the house snowed in. Kevin got audio books, stocking caps (OU and TU), earphones (for listening to music and books on an MP3 player) and more. We also found out we got another week of eight hours per day of nursing. After a few days of us taking care of Kevin, then a nurse coming for a few days, the snow relented and other family members were able to come around again to help. On December 31st, we found out that another two weeks were approved for eight hours per day of nursing. After that, who knows. Last week, physical, occupational and speech therapists all paid visits to assess Kevin and determine plans for treatment.
Kevin seems to have made the adjustment home really well. He has been off oxygen completely after some conflicting orders were sent home with him. We had a pulsox, blood pressure reader, and stethoscope donated so we have the vital reading equipment set up. When we put eye ointment in his right eye, we also check to see if he needs cleaned, and check his pulsox readings at the same time. Kevin usually has a O2 saturation of 96 and above. Sometimes it is closer to 93, but that is still good.
For the first week he was home, Kevin didn’t seem to have the extended periods of alertness he had been having in the hospital. Around mid-last week Kevin started having them once more and has had several periods of alertness since. In fact, Kevin seems pretty alert just now, after putting in his eye ointment, turning him on his right and checking his vitals (95% O2 and 91-94 HR). In an hour, he gets some reglan and a breathing treatment. In two hours, he gets fed and then turned towards his left. At that point he will be pretty settled and I will go to sleep on the couch for a couple hours, get up check him, put in eye ointment, then turn him to his right again. It will go like that until Angie relieves me at 5 AM. While we have been having almost daily nursing it has gone okay, but at times it has felt like we are at the breaking point…..yeah already. But most of the time it seems to work out. We will continue requesting nurses from Kevin’s insurance to keep Kevin out of the hospital and last week we came up with more plans to progress Kevin’s condition.
One of the things we do is have him help us when we do daily tasks for him. Wrap his hand around the toothbrush and use his hand to do the brushing. Rub his fingers through his hair before we put gel in it. Use his hand to grasp the rag to clean his face and body. These monotonous tasks could be what triggers something in his conscious. They also told us to sing over learned songs to him, such as Happy Birthday and the alphabet. We might try Jesus Loves Me too!
Today, Angie stayed home with Kevin, while the rest of us went to church. They watched a sermon online, which is hooked up to the TV. We had a couple visitors today and a few others since Kevin came home…that’s been nice. It’s good for Kevin and good for us.
Thanks for your prayers. Thanks for your concern. Thanks for the love that you have shown us during this trial.
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Sunday, December 20, 2009
Update #112 on Kevin
When we last left you, we were faced with four hours of us being alone with Kevin. No nurses, no doctors, no therapists…just us, family, non-professional, barely trained, imperfect family members filled with trepidation. We made it. Kevin was coughing quite a bit, sounding gurgly (the technical term) and we decided to give him an impromptu breathing treatment. It seemed to help subside the coughing. That night the nurse got there around 11pm and we took the opportunity to get some sleep. That night Kevin threw up several times around 3:30 AM. Around 6:45 AM someone woke up for the shift change (another nurse took over for the night nurse).
That day, Saturday, we got Kevin up in his temporary chair with the nurse and Kevin seemed to be having a decent day, however, we decided to switch back to the familiar style of suctioning with a sleeved catheter because he was still coughing quite a bit. This style of suction is easier to do periodically throughout the day as he needs it, without going through setting up a sterol environment, it is covered in a see through plastic sleeve.
At 3 PM, the nurse’s shift was over, leaving us once again and the helm of Kevin’s care. This time it was twice as long for eight hours! That evening we continued turning Kevin, giving him his meds, using the hoyer lift to get him in his chair, caring for him, suctioning him and giving him breathing treatments. By 11PM Saturday night we had made it yet again. Another nurse came and took the night shift from 11PM to 7 AM.
This morning, Sunday, Angie and Taylor got up early to give Kevin his meds and a bath. Then while everyone else went to church, I stayed with Kevin, completely by myself. Wow, talk about someone’s life in your hands. It turned out fine. We watched a sermon together, then I played some worship songs. I did everything he needed me to do. I even found time to fold the laundry and have some breakfast. When the nurse left at 7 AM this morning, it launched a new challenge for the family. We wouldn’t have a nurse again until that night at 11PM. That’s sixteen hours!!!!! First four hours, then eight, now sixteen! The challenge was getting bigger and bigger. After a long day of care, we made it. A nurse came on at 11PM. That nurse leaves at 7AM and another one arrives and leaves at 3PM tomorrow afternoon.
The fear of doing everything for Kevin is lessening, but that doesn’t mean it’s not there and will go away anytime soon. We wonder how often we will getting ‘free time’ during this phase of Kevin’s recovery. And yet we will soldier on.
Tomorrow, December 21st, is the anniversary for myself and Angie. We have been married thirteen years. I know when we stood in front of all our friends and family that we had no idea what would be happening thirteen years later. Kevin and Greg were my bestmen, and they stood behind me as we made our vows. All the family is pitching in, but I know that God has given me something very special in my wife, Angie. She has been more than one could ever expect in a tragedy such as this. Tomorrow, Kohl will be here while the nurse is here, so that Angie and I can go and spend some time together during the day.
Throughout the week, the nursing hours will continue to dwindle until there will be no nurses on Christmas Eve or beyond. We would love to have nurses continue on, but insurance will not pay for it. I’m not sure how we will overcome being stretched and challenged in this phase of Kevin’s recovery, but by the grace of God we will.
Thanks for reading and praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
That day, Saturday, we got Kevin up in his temporary chair with the nurse and Kevin seemed to be having a decent day, however, we decided to switch back to the familiar style of suctioning with a sleeved catheter because he was still coughing quite a bit. This style of suction is easier to do periodically throughout the day as he needs it, without going through setting up a sterol environment, it is covered in a see through plastic sleeve.
At 3 PM, the nurse’s shift was over, leaving us once again and the helm of Kevin’s care. This time it was twice as long for eight hours! That evening we continued turning Kevin, giving him his meds, using the hoyer lift to get him in his chair, caring for him, suctioning him and giving him breathing treatments. By 11PM Saturday night we had made it yet again. Another nurse came and took the night shift from 11PM to 7 AM.
This morning, Sunday, Angie and Taylor got up early to give Kevin his meds and a bath. Then while everyone else went to church, I stayed with Kevin, completely by myself. Wow, talk about someone’s life in your hands. It turned out fine. We watched a sermon together, then I played some worship songs. I did everything he needed me to do. I even found time to fold the laundry and have some breakfast. When the nurse left at 7 AM this morning, it launched a new challenge for the family. We wouldn’t have a nurse again until that night at 11PM. That’s sixteen hours!!!!! First four hours, then eight, now sixteen! The challenge was getting bigger and bigger. After a long day of care, we made it. A nurse came on at 11PM. That nurse leaves at 7AM and another one arrives and leaves at 3PM tomorrow afternoon.
The fear of doing everything for Kevin is lessening, but that doesn’t mean it’s not there and will go away anytime soon. We wonder how often we will getting ‘free time’ during this phase of Kevin’s recovery. And yet we will soldier on.
Tomorrow, December 21st, is the anniversary for myself and Angie. We have been married thirteen years. I know when we stood in front of all our friends and family that we had no idea what would be happening thirteen years later. Kevin and Greg were my bestmen, and they stood behind me as we made our vows. All the family is pitching in, but I know that God has given me something very special in my wife, Angie. She has been more than one could ever expect in a tragedy such as this. Tomorrow, Kohl will be here while the nurse is here, so that Angie and I can go and spend some time together during the day.
Throughout the week, the nursing hours will continue to dwindle until there will be no nurses on Christmas Eve or beyond. We would love to have nurses continue on, but insurance will not pay for it. I’m not sure how we will overcome being stretched and challenged in this phase of Kevin’s recovery, but by the grace of God we will.
Thanks for reading and praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Friday, December 18, 2009
Update #111 on Kevin
So far today has gone really well. About an hour ago, Kevin finished about a 45 minute coughing spell. He was able to expectorate well and we gave him a breathing treatment. About ten minutes the day nurse left. We are now alone and fully in charge of Kevin’s care until 11pm tonight. They are weaning us off private duty nurses.
Kevin is sitting in his chair and resting. We’ll be putting him back to bed in about 30-45 minutes and later tonight give him dinner.
Thanks for reading and especially praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Kevin is sitting in his chair and resting. We’ll be putting him back to bed in about 30-45 minutes and later tonight give him dinner.
Thanks for reading and especially praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Update #110 on Kevin
So, we brought Kevin home to his house on Wednesday night. It’s been a little over a day and a half and things seem to be going fairly well. Of course, there are the added care concerns, but for these first several days there are home health care nurses. After a week, nurses and therapists will be limited to a few visits per week.
We already had a great response for the gloves that I mentioned in the previous update. Some of the latest things that insurance doesn’t seem to be going to cover is a blood pressure cuff, pulsox machine, stethoscope and an over the bed table.
We have been organizing all the medical supplies that have been delivered and putting together cabinets to hold them. Tonight we put together four chairs, a dining room table, two cabinets, a shelf and vertical blinds on the patio door. I spent several hours trying to scan documents to send to our nurse advocate. The first two tries resulted in no scans showing up on the computer. I tried an alternate method and I finally got the scans at the end of the business day.
Kevin is doing well. We don’t have a neuro chair at home, but we got him up in a gerichair for a couple hours today. It’s interesting, because there is no safety belt, nor headrest. He tends to slide all around on it. He has coughed some, but almost always coughing out what was bothering him.
Several family members noticed alertness, as well as the nurses that have been here so far. Today, one of the nurses told us that we were doing a marvelous job, at less than twenty four hours in. He said usually families aren’t this organized for three to four days and sometimes a week. That felt good, even though it seems like we have many more things to do.
We brought home two more trash cans. It seems we need them.
Last night, after we brought Kevin home, I had a very vivid dream that he woke up. He didn’t just wake up, but he was moving around, talking and acting like normal. In the dream, we were discussing whether or not he should know how long he has been in ‘out’. I even dreamed the question, what do you remember the weather being outside, hot? Cause it’s not now! I remember thinking towards the end of the dream if I was in fact dreaming, but it felt too real to be a dream. Then I woke up.
Please pray that Kevin continues to progress. Thanks for reading and praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
We already had a great response for the gloves that I mentioned in the previous update. Some of the latest things that insurance doesn’t seem to be going to cover is a blood pressure cuff, pulsox machine, stethoscope and an over the bed table.
We have been organizing all the medical supplies that have been delivered and putting together cabinets to hold them. Tonight we put together four chairs, a dining room table, two cabinets, a shelf and vertical blinds on the patio door. I spent several hours trying to scan documents to send to our nurse advocate. The first two tries resulted in no scans showing up on the computer. I tried an alternate method and I finally got the scans at the end of the business day.
Kevin is doing well. We don’t have a neuro chair at home, but we got him up in a gerichair for a couple hours today. It’s interesting, because there is no safety belt, nor headrest. He tends to slide all around on it. He has coughed some, but almost always coughing out what was bothering him.
Several family members noticed alertness, as well as the nurses that have been here so far. Today, one of the nurses told us that we were doing a marvelous job, at less than twenty four hours in. He said usually families aren’t this organized for three to four days and sometimes a week. That felt good, even though it seems like we have many more things to do.
We brought home two more trash cans. It seems we need them.
Last night, after we brought Kevin home, I had a very vivid dream that he woke up. He didn’t just wake up, but he was moving around, talking and acting like normal. In the dream, we were discussing whether or not he should know how long he has been in ‘out’. I even dreamed the question, what do you remember the weather being outside, hot? Cause it’s not now! I remember thinking towards the end of the dream if I was in fact dreaming, but it felt too real to be a dream. Then I woke up.
Please pray that Kevin continues to progress. Thanks for reading and praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Wednesday, December 16, 2009
Update #109 on Kevin: Going Home Today
So it’s official. Unless there is some major issue, we are taking Kevin home today around 4 PM. Thanks for praying for Kevin and our family. Kevin is sitting in his neuro chair one last time right now. Soon his custom wheelchair will be delivered, but until then we have a geri chair at the house. We are working out issues with the hoyer lift we have and deliveries of supplies and food are being made today and tomorrow. Please pray for the nursing staff that will be taking care of Kevin throughout the next 7 days. The first two days someone will be there 24 hours/day. The next two days someone will be there for 16 hours/day, the next two days there will be someone there for 12 hours/day and on the 7th day someone will be there for 8 hours. After that, they will move to a thrice weekly schedule.
Pray as we enter this next phase. Pray that everything gets delivered that needs to be delivered. Pray that Kevin continues to heal and progress, so that he can be admitted to a brain rehab center.
Thanks for reading and praying,
Matt, Angie and family
PS – Does anyone have any extra vinyl gloves hanging around???? We could use a few hundred sizes medium, large and XL.
_______________________________
http://www.prayforkevin.com/
Pray as we enter this next phase. Pray that everything gets delivered that needs to be delivered. Pray that Kevin continues to heal and progress, so that he can be admitted to a brain rehab center.
Thanks for reading and praying,
Matt, Angie and family
PS – Does anyone have any extra vinyl gloves hanging around???? We could use a few hundred sizes medium, large and XL.
_______________________________
http://www.prayforkevin.com/
Tuesday, December 15, 2009
Update #108 on Kevin
It is with somber mood and mixed emotions that I write this, possibly the last update at Meadowbrook. It started with news today that his third TB sputum test came back negative. The doctor told us that his blood tests look good, Kevin seemed to be doing well, and that we could start looking at a discharge tomorrow afternoon.
Wow, that was this afternoon…..it has seemed like a whirlwind since then. It has felt so quick. I know we have been here for awhile, but this weekend we didn’t even know when we would get results back for TB, we were told at the end of last week that it could take as long as 2 to 6 weeks, and one staff member even told us that they thought it would be bad medicine to send him home prior to getting the final results. Now, we are scrambling to get things in place. There still seems to be several things that need to happen before he can be discharged tomorrow.
Last night, Kevin threw up about twelve times. A non-RT staff member suctioned him several times and the vomiting started happening between the 2nd and 3rd suctions (yes, there was a bit of spit up at the 2nd suction, and yet they continued giving him a couple minutes to recuperate in between). It took Kevin a good hour and a half to settle down. Also, after checking for residuals, the charge nurse left Kevin’s feeding plug open. Angie found bile spilling out all over his clothes.
We are talking with a couple doctors about taking Kevin on. We hope to hear back from them tomorrow. We are also trying to get the hoyer situation straightened out at the house. They brought a hoyer to transport someone that is in a sitting position from bed to chair, but Kevin needs a hoyer and sling that transports someone laying down. The bed that was delivered to the house was making these jarring popping noises that sounded like the bed was coming apart. We called the Equipment company to come and take a look at it only to find that it had been put together askew and the railing was hitting the bed and springs making the noises.
There have been some very good moments here at Meadowbrook and some very trying ones as well. Today I tried to soothe a relationship with a staff member who had taken offense at a misunderstood question that I raised. Upon passing her in the hall, I told her I was sorry that it had happened and would have gone on, but she continued to walk by me as I spoke. When she got about twenty paces down the hallway, without turning around to face me, said “whatever” and continued walking away. Whew…..
I read back over the first posts after arriving here and thought about all the things that had transpired here. Many friends have been made. Many statements of encouragement were given us. When Kevin arrived here three months ago, he had just started opening his eyes, was still on a respirator and had C-Diff among other ailments. His chest tube hole was healing as was the skin over his skull fracture. Since then, he started yawning, moving his eyes more, getting over muscle spasms, getting through times of fever and recently begun responding more often to vocal commands. Several times lately, when I leaned in to kiss him on the cheek he pushed his head towards mine. And several staff members have noted that he seems to be smiling. The right side of his face seems to be getting more movement in it and the left side of his face seems to be loosening up from reflex tones.
Today a few times he has closed his right eyelid when he is resting. He has been doing that more within the past couple weeks, and today he seems to be resting well. Some things haven’t changed though, tonight a couple newer staff members asked me who was older between Kevin and myself. Joking, I appeared appalled and told them I am twelve years younger than Kevin. Kevin has aged very well and has enjoyed that fact. I can’t tell you how many times someone has thought he was my twin or younger brother. Good grief!
As we look to bring Kevin home, our goal is to continue caring for him as he progress with the hope that an acute rehab center would be able to re-evaluate Kevin for admittance in their program. In the meantime our family will lean on God and his church as we forge onward. We’ll let you know if he gets discharged tomorrow.
Thanks for reading and praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Wow, that was this afternoon…..it has seemed like a whirlwind since then. It has felt so quick. I know we have been here for awhile, but this weekend we didn’t even know when we would get results back for TB, we were told at the end of last week that it could take as long as 2 to 6 weeks, and one staff member even told us that they thought it would be bad medicine to send him home prior to getting the final results. Now, we are scrambling to get things in place. There still seems to be several things that need to happen before he can be discharged tomorrow.
Last night, Kevin threw up about twelve times. A non-RT staff member suctioned him several times and the vomiting started happening between the 2nd and 3rd suctions (yes, there was a bit of spit up at the 2nd suction, and yet they continued giving him a couple minutes to recuperate in between). It took Kevin a good hour and a half to settle down. Also, after checking for residuals, the charge nurse left Kevin’s feeding plug open. Angie found bile spilling out all over his clothes.
We are talking with a couple doctors about taking Kevin on. We hope to hear back from them tomorrow. We are also trying to get the hoyer situation straightened out at the house. They brought a hoyer to transport someone that is in a sitting position from bed to chair, but Kevin needs a hoyer and sling that transports someone laying down. The bed that was delivered to the house was making these jarring popping noises that sounded like the bed was coming apart. We called the Equipment company to come and take a look at it only to find that it had been put together askew and the railing was hitting the bed and springs making the noises.
There have been some very good moments here at Meadowbrook and some very trying ones as well. Today I tried to soothe a relationship with a staff member who had taken offense at a misunderstood question that I raised. Upon passing her in the hall, I told her I was sorry that it had happened and would have gone on, but she continued to walk by me as I spoke. When she got about twenty paces down the hallway, without turning around to face me, said “whatever” and continued walking away. Whew…..
I read back over the first posts after arriving here and thought about all the things that had transpired here. Many friends have been made. Many statements of encouragement were given us. When Kevin arrived here three months ago, he had just started opening his eyes, was still on a respirator and had C-Diff among other ailments. His chest tube hole was healing as was the skin over his skull fracture. Since then, he started yawning, moving his eyes more, getting over muscle spasms, getting through times of fever and recently begun responding more often to vocal commands. Several times lately, when I leaned in to kiss him on the cheek he pushed his head towards mine. And several staff members have noted that he seems to be smiling. The right side of his face seems to be getting more movement in it and the left side of his face seems to be loosening up from reflex tones.
Today a few times he has closed his right eyelid when he is resting. He has been doing that more within the past couple weeks, and today he seems to be resting well. Some things haven’t changed though, tonight a couple newer staff members asked me who was older between Kevin and myself. Joking, I appeared appalled and told them I am twelve years younger than Kevin. Kevin has aged very well and has enjoyed that fact. I can’t tell you how many times someone has thought he was my twin or younger brother. Good grief!
As we look to bring Kevin home, our goal is to continue caring for him as he progress with the hope that an acute rehab center would be able to re-evaluate Kevin for admittance in their program. In the meantime our family will lean on God and his church as we forge onward. We’ll let you know if he gets discharged tomorrow.
Thanks for reading and praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Monday, December 14, 2009
Update #107 on Kevin
So, the first TB test came back negative. The second test was to check Kevin’s level of antigens (which bind to antibodies). It showed us that the first test could have been wrong. So then we have to wait for three samples to be cultured from three consecutive days. The final results could take weeks, but initial results have already started to come in. The first two days samples have come back as negative for TB. Today we should find out about the third sample
The past several days Kevin has still been coughing, but not for the extended periods that he was a couple weeks ago. He has also been keeping his food down, except for maybe Friday night. He had spit up/thrown up some, but not sure what it consisted of or what caused it.
Last week he stopped taking Vancomycin, as well as benedryl. Kevin has already seemed less drowsy and more aware since stopping the benedryl. He was also on doribax until this weekend, but was put back on it last night. WE are still researching why he went back on it.
On the radio, we keep hearing songs that Kevin likes. Now that it is Christmastime, we have heard his favorite Christmas song several times. It’s called, “Do They Know It’s Christmas?” and was recorded by Band Aid in the mid-80’s to raise money for Ethiopia. Any time we hear that song, we think of Kevin. And when it’s come on the radio while we’re at Meadowbrook, we play it for him.
Please be praying for a doctor to follow Kevin when we leave Meadowbrook. We have been following different avenues trying to find Kevin a doctor, today a doctor denied taking him on, so we continue the search. We do not feel comfortable taking Kevin home, until we have a doctor on board. Please pray that God would lead us to the doctor that He has for Kevin.
Please also pray for our family. This process wears on you. Some days are good, and some days you feel as if you are being ripped apart from all directions. Thanks for lifting us up.
Thanks for praying and reading,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
The past several days Kevin has still been coughing, but not for the extended periods that he was a couple weeks ago. He has also been keeping his food down, except for maybe Friday night. He had spit up/thrown up some, but not sure what it consisted of or what caused it.
Last week he stopped taking Vancomycin, as well as benedryl. Kevin has already seemed less drowsy and more aware since stopping the benedryl. He was also on doribax until this weekend, but was put back on it last night. WE are still researching why he went back on it.
On the radio, we keep hearing songs that Kevin likes. Now that it is Christmastime, we have heard his favorite Christmas song several times. It’s called, “Do They Know It’s Christmas?” and was recorded by Band Aid in the mid-80’s to raise money for Ethiopia. Any time we hear that song, we think of Kevin. And when it’s come on the radio while we’re at Meadowbrook, we play it for him.
Please be praying for a doctor to follow Kevin when we leave Meadowbrook. We have been following different avenues trying to find Kevin a doctor, today a doctor denied taking him on, so we continue the search. We do not feel comfortable taking Kevin home, until we have a doctor on board. Please pray that God would lead us to the doctor that He has for Kevin.
Please also pray for our family. This process wears on you. Some days are good, and some days you feel as if you are being ripped apart from all directions. Thanks for lifting us up.
Thanks for praying and reading,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Tuesday, December 8, 2009
Update #106 on Kevin
What can I say? Temp nurses are like a box of chocolates…..you never know what you’re gonna get. Last night’s nurse left waaaay to much to be desired and today’s wasn’t much better. Angie stayed up here last night and she literally had to ask for everything that was done last night. His meal time was 2 ½ hours late. Angie had to ask for eye ointment to be put in the eyes almost every time. She found his feeding tube open this morning after that nurse had gone. There was liquid food all over Kevin’s gown, etc….. Today wouldn’t have been better if not for some other staff members who stepped up and filled the gap.
Tonight has been good. Shift change was at 7 PM. When there is trust with care staff, you can relax. They know Kevin and they know what they are doing. You trust and then you can breathe.
Kevin is laying in bed and relaxed. He moved back into bed from his neuro chair about an hour ago. He is settled and had dinner through his feeding tube. I just looked over and he is alert and eyes wide open, so I turned on some TV. He may not be sleepy now, but when he gets his next dose of Benedryl, he’ll probably be knocked out.
Today, I met with the insurance adjuster about some of Kevin’s stuff. We have some of his stuff in storage, as we have time to sort through it to determine damage. Not sure when we’ll find time to do that, but several pieces of furniture we were able to show the adjuster today. I also showed her some electronics that were on the floor and damaged by the water. She was very sympathetic to what is going on with Kevin and was a pleasure to work with today.
Before that, I had went to an area minister’s meeting. Lunch was good, fellowship was good and the message was impacting. Angie and I, as missionaries, are supported by several of the churches that were represented. Several of them have also helped tremendously in ways beyond our imagination. A minister from one of our supporting churches brought a devotion about things he has learned in ministry. I’m going to put a summary below…
A. Ministry is really really really really hard. (Christ promised us it would be hard).
B. Trust the Gospel. (It’s God’s kingdom, Sometimes, we want to stand over a seed and yell. To try and woo the seed to grow. We have to trust that God will be Lord of our life, whatever it consists of).
C. Trust your call. (Our call is to follow God, wherever He wants us to be).
All those points hit home for various reasons, but what really stood out was what was said to support the third point. It is that to trust our call, we have to ask ourselves, “Am I interruptible by God?” Abraham was interrupted by God. Jonah was interrupted by God. Mary was definitely interrupted by God.
Mom was released from St. John’s Hospital today. The swelling in her leg has gone down, but it is still a little red and sore. She has to take some prescriptions to continue to the treatment.
Kevin seemed to finally be dozing, or at least receptive to the idea. I failed to mention yesterday, that he is in room #110. But you might ask at the front counter, in case they move him again.
Thanks for reading and praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Tonight has been good. Shift change was at 7 PM. When there is trust with care staff, you can relax. They know Kevin and they know what they are doing. You trust and then you can breathe.
Kevin is laying in bed and relaxed. He moved back into bed from his neuro chair about an hour ago. He is settled and had dinner through his feeding tube. I just looked over and he is alert and eyes wide open, so I turned on some TV. He may not be sleepy now, but when he gets his next dose of Benedryl, he’ll probably be knocked out.
Today, I met with the insurance adjuster about some of Kevin’s stuff. We have some of his stuff in storage, as we have time to sort through it to determine damage. Not sure when we’ll find time to do that, but several pieces of furniture we were able to show the adjuster today. I also showed her some electronics that were on the floor and damaged by the water. She was very sympathetic to what is going on with Kevin and was a pleasure to work with today.
Before that, I had went to an area minister’s meeting. Lunch was good, fellowship was good and the message was impacting. Angie and I, as missionaries, are supported by several of the churches that were represented. Several of them have also helped tremendously in ways beyond our imagination. A minister from one of our supporting churches brought a devotion about things he has learned in ministry. I’m going to put a summary below…
A. Ministry is really really really really hard. (Christ promised us it would be hard).
B. Trust the Gospel. (It’s God’s kingdom, Sometimes, we want to stand over a seed and yell. To try and woo the seed to grow. We have to trust that God will be Lord of our life, whatever it consists of).
C. Trust your call. (Our call is to follow God, wherever He wants us to be).
All those points hit home for various reasons, but what really stood out was what was said to support the third point. It is that to trust our call, we have to ask ourselves, “Am I interruptible by God?” Abraham was interrupted by God. Jonah was interrupted by God. Mary was definitely interrupted by God.
Mom was released from St. John’s Hospital today. The swelling in her leg has gone down, but it is still a little red and sore. She has to take some prescriptions to continue to the treatment.
Kevin seemed to finally be dozing, or at least receptive to the idea. I failed to mention yesterday, that he is in room #110. But you might ask at the front counter, in case they move him again.
Thanks for reading and praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Monday, December 7, 2009
Update #105 on Kevin
So, the staff at Meadowbrook has moved Kevin again. They did it because they are testing Kevin for tuberculosis. TB is a potentially serious infectious disease that primarily affects the lungs. They started testing Kevin for TB on Saturday with a skin test and samples. The odd part is that they didn’t move him until today. The room has negative pressure, which means it cycles the air out so that it can be filtered. If he does have TB how many people were infected? He doesn’t seem to have many of the symptoms of TB, except coughing and the occasional fever, although I appreciate them checking under every rock. The lung doctor just came in and said she doesn’t think he has TB, but I don’t think that was the final verdict. She said his chest X-Rays looked better, and that is pneumonia may be clearing up. She said it was most likely where he had aspirated (swallowed fluids into his lungs).
When you come to visit, you have to wear masks for the airborne possible TB, then gowns and gloves for the staff infection, which even though is colonized, still comes across as an isolation factor. One plus for moving into the negative pressure room isolation room is that it’s a private room again.
Kevin has both eyes closed right now and seems to be really resting. Usually, he doesn’t close the right eyelid on his own. Sometimes he does though and this is one of those times. Sitting here, I have seen his right arm move a little, his left arm twitch, his head rock back and forth a bit and just now his right foot moving. I remember the first few days just wishing to see anything move.
My mom is still in the hospital. They started treating her for cellulitis. Then for staff infection. Now they have her foot on a cold pack and can’t figure out what is causing the swelling. Angie and I finally got to see her yesterday afternoon. We took her a Sunday paper and went to tell the nurses they left the water out of mom’s ice/water chill pack. They have her on Vancomiacin for whatever it is that they don’t know yet. They have Kevin back on Vancomiacin for the pneumonia and possible TB.
Kevin is also on benedryl. If his physiology is anything like mine, it will make him drowsy, which he seems to be. Hopefully soon, we will know if Kevin has tuberculosis or not…that way we can get rid of these hot and humid masks.
Thanks for reading and praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
When you come to visit, you have to wear masks for the airborne possible TB, then gowns and gloves for the staff infection, which even though is colonized, still comes across as an isolation factor. One plus for moving into the negative pressure room isolation room is that it’s a private room again.
Kevin has both eyes closed right now and seems to be really resting. Usually, he doesn’t close the right eyelid on his own. Sometimes he does though and this is one of those times. Sitting here, I have seen his right arm move a little, his left arm twitch, his head rock back and forth a bit and just now his right foot moving. I remember the first few days just wishing to see anything move.
My mom is still in the hospital. They started treating her for cellulitis. Then for staff infection. Now they have her foot on a cold pack and can’t figure out what is causing the swelling. Angie and I finally got to see her yesterday afternoon. We took her a Sunday paper and went to tell the nurses they left the water out of mom’s ice/water chill pack. They have her on Vancomiacin for whatever it is that they don’t know yet. They have Kevin back on Vancomiacin for the pneumonia and possible TB.
Kevin is also on benedryl. If his physiology is anything like mine, it will make him drowsy, which he seems to be. Hopefully soon, we will know if Kevin has tuberculosis or not…that way we can get rid of these hot and humid masks.
Thanks for reading and praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Saturday, December 5, 2009
Update #104 on Kevin
So Kevin coughed and coughed again last night. He threw up his dinner too (can of food). His fever came back again, getting up to 103.
We think they delivered the wrong hoyer lift and/or sling. This one is for transporting someone who is sitting up. Kevin is not, he is laying down when he is transported.
The pulmonologist came in again today (batting 2 out of 6 days, but two in a row is great!). He wanted to do a TB test for Kevin. He also is treating him for pneumonia.
Mom is being treated for a staff infection now, even though she hasn’t been told what the latest cultures have discovered. She said her swelling had gone down some, only to go back up later in her leg.
Pray for Kevin to have a restful night of sleep tonight. Pray that communication happens so that Kevin gets into the neuro chair twice per day, not more than 2 ½ hours at a time, and is monitored for when he goes to the bathroom.
Thanks for reading and praying. Have a good Sunday,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
We think they delivered the wrong hoyer lift and/or sling. This one is for transporting someone who is sitting up. Kevin is not, he is laying down when he is transported.
The pulmonologist came in again today (batting 2 out of 6 days, but two in a row is great!). He wanted to do a TB test for Kevin. He also is treating him for pneumonia.
Mom is being treated for a staff infection now, even though she hasn’t been told what the latest cultures have discovered. She said her swelling had gone down some, only to go back up later in her leg.
Pray for Kevin to have a restful night of sleep tonight. Pray that communication happens so that Kevin gets into the neuro chair twice per day, not more than 2 ½ hours at a time, and is monitored for when he goes to the bathroom.
Thanks for reading and praying. Have a good Sunday,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Friday, December 4, 2009
Update #103 on Kevin
We’ve been requesting a pulmonologist since Monday. Kevin has been having so many coughing bouts and throwing up, etc… that we wanted to have one of the pulmonologists see him. Finally, tonight, the pulmonologist came in. This was after I went to the charge nurse and told her that this was becoming a ‘delay in care’ issue. It’s interesting, if you know the right phrases, how quickly they will fulfill your needs. The pulmonologist didn’t like what he saw was coming out of Kevin’s lungs, and thinks there is most likely an infection, like pneumonia. He is ordering blood work to be done, and thinks Kevin should get some medicine to combat this. The pulmonologist thinks that is why he has been coughing so much.
Even tonight, Kevin was having another coughing spell. Coughing, then throwing up his food. His food comes in cans and is given to him through a tube directly into his stomach. They have been trying to get him calmed down with meds and breathing treatments. He also has a fever tonight of 103. They were going to give him Tylenol to break the fever.
They have been trying to change medicine throughout the week to see if there is something that is making him vomit. Took him off Metamucil and put him on Colace (I think that’s it). They also took him off Vitamin C and increased his reglan.
We continue to search for the personnel on a home health care team of doctors. We have called a few, sought out several, but still have not heard back from them. The rest of his care team is being shaped too (nurses, therapists, suppliers, etc…).
A few pieces of equipment were delivered to Kevin’s house today. A hoyer lift (it is hydraulic), a geri chair (temporary until Kevin’s wheelchair is done – a few weeks), and a hospital bed. The bed is okay. I am not impressed with the swimming poolesque air mattress that lays on top of the mattress. It is supposed to prevent bed sores, but I have my doubts and concerns. We have raised and lowered the bed. A few times now, as it was going up or down or into position, we hear the motor humming “zzzzzzz” then a loud POP! It sounds like something is breaking on the bed. It has happened when it is moving into different positions.
Since we have moved into the new room, we seem to have had issues every day with his nursing care. We have to follow up on things constantly, like eye ointment, and the time to put him in his neuro chair. There have definitely been some shining moments though. Those are the times, when we lean back and go “ahhhh” as we leave Kevin in the capable hands of those staff members we trust.
I got permission for female family members to stay with Kevin at night, so that opens up more than just a couple of us in a weekly schedule.
And on a note on our mom, they have begun a new antibiotic for her cellulitis. I guess her blood cultures came back and they found a medicine that works better than what she has been on. Not sure when she will get out of St. John’s Hospital.
There still seems to be a myriad of tasks to do before Kevin gets to go home, like finding a generator. And we want him over any infection before he does.
Thanks for reading and praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
Even tonight, Kevin was having another coughing spell. Coughing, then throwing up his food. His food comes in cans and is given to him through a tube directly into his stomach. They have been trying to get him calmed down with meds and breathing treatments. He also has a fever tonight of 103. They were going to give him Tylenol to break the fever.
They have been trying to change medicine throughout the week to see if there is something that is making him vomit. Took him off Metamucil and put him on Colace (I think that’s it). They also took him off Vitamin C and increased his reglan.
We continue to search for the personnel on a home health care team of doctors. We have called a few, sought out several, but still have not heard back from them. The rest of his care team is being shaped too (nurses, therapists, suppliers, etc…).
A few pieces of equipment were delivered to Kevin’s house today. A hoyer lift (it is hydraulic), a geri chair (temporary until Kevin’s wheelchair is done – a few weeks), and a hospital bed. The bed is okay. I am not impressed with the swimming poolesque air mattress that lays on top of the mattress. It is supposed to prevent bed sores, but I have my doubts and concerns. We have raised and lowered the bed. A few times now, as it was going up or down or into position, we hear the motor humming “zzzzzzz” then a loud POP! It sounds like something is breaking on the bed. It has happened when it is moving into different positions.
Since we have moved into the new room, we seem to have had issues every day with his nursing care. We have to follow up on things constantly, like eye ointment, and the time to put him in his neuro chair. There have definitely been some shining moments though. Those are the times, when we lean back and go “ahhhh” as we leave Kevin in the capable hands of those staff members we trust.
I got permission for female family members to stay with Kevin at night, so that opens up more than just a couple of us in a weekly schedule.
And on a note on our mom, they have begun a new antibiotic for her cellulitis. I guess her blood cultures came back and they found a medicine that works better than what she has been on. Not sure when she will get out of St. John’s Hospital.
There still seems to be a myriad of tasks to do before Kevin gets to go home, like finding a generator. And we want him over any infection before he does.
Thanks for reading and praying,
Matt, Angie and family
_______________________________
http://www.prayforkevin.com/
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