Tuesday, January 12, 2010

Update #114 on Kevin

Today we are going to a doctor. This is the first primary care doctor to agree to see Kevin, so we have mixed emotions. We are happy to finally have a doctor agree to see Kevin, but we don’t want just any warm body taking on Kevin’s case. We have heard some good things about Dr. Ting, so we are hopeful. Also, even though the agreement when we left Meadowbrook was to have the clinic that his doctor at Meadowbrook is associated with be his interim care clinic, he has not really wanted to fulfill that role. Would you pray that if this is to be Kevin’s doctor that it would be clear?


Kevin has been continuing to improve, slowly. He is opening his mouth at times very wide when asked to do oral care (brushing, etc….). He is opening wider in some cases much more than before. He is also been doing well with Physical and Occupational therapy. They have been sitting Kevin up on the edge of the bed for twenty minutes. They have done this three times, including us in the process to teach us at the same time.

Thursday, we have an appointment with the eye doctor. It is a follow up for Kevin’s right eye. It hasn’t gotten any worse, but it hasn’t gotten much better either. We’ll see what he says.

Both appointments have to be accomplished with ambulatory transport (EMSA). This is because the paperwork for Kevin’s wheelchair got sent to the wrong department at his insurance for the first month and a half. Now, that it is finally at the right hands, we hope to get authorization soon, or insurance will have to approve another transport to the pulmonologist and neurologist (when we find one).

Our nursing schedule ends this Thursday. We are in the process of requesting more time. We hope to hear soon if we have it after Thursday or for how long.

We are trying to find a home healthcare pharmacy, such as Freeland Brown in Tulsa, but that is in Kevin’s insurance’s network. We need things such as 4 in by 4 in drain sponges that his DME company (Durable Medical Equipment – supplies bed, respiratory, etc……) does not carry any longer and that we need for Kevin’s trach care.

Yesterday, I cut Kevin’s hair. I have been cutting my own hair for fourteen years now and every time that Kevin would see me cutting my hair he would ask me to cut his. Sometimes I had time, sometimes I didn’t. But I made time yesterday and cut it the way he likes it and has worn it for awhile.

Well, I am going to finish getting ready. We will be leaving for the doctor when EMSA gets here in the next thirty minutes or so.

Thanks for reading and especially praying,
Matt, Angie and family
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http://www.prayforkevin.com/

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