Update #57 on Kevin

Have you ever heard the song “Lord, I Hope This Day Is Good” by Don Williams? I remember Kevin bringing home that song on an 8-track. For those of you too young to remember the vinyl albums and 45s, good luck remembering 8-tracks. They were basically pre-cassette cassettes, about the size of a thick piece of toast. Anyway, the lyrics to that song are…


Lord, I hope this day is good
I'm feelin' empty and misunderstood
I should be thankful Lord, I know I should
But Lord, I hope this day is good

Lord, have you forgotten me
I've been prayin' to you faithfully
I'm not sayin' I'm a righteous man
But Lord, I hope you understand

I don't need fortune and I don't need fame
Send down the thunder Lord, send down the rain
But when you're planning just how it will be
Plan a good day for me

You've been the king since the dawn of time
All that I'm asking is a little less crime
It might be hard fo the devil to do

As we arrived here this morning (we had another family member stay last night thankfully), the sun was up, and things felt hopeful. We got there in time to meet today’s respiratory therapist and RN. A short while later and his main doctor came in. We have felt very thankful to God for this doctor. As he examined Kevin, we waited. Once he finished, he shared some thoughts and we chatted for a bit. We had already noticed that Kevin’s right eye had lost some of its swollenness, then he noticed too. He wants to make sure he isn’t missing anything, even though he already called in an infection specialist doctor. He mentioned different ideas such as calling in favors of eye doctors that he knows to get them in Meadowbrook. In fourteen years, he told us he hasn’t had an eye specialist come in there. He also talked about the possibility of taking Kevin somewhere to have his eye checked. Another option was to have an MRI done of Kevin’s eye. He wants to make sure that the infection is not getting into Kevin’s right eyeball. He said the benefit of an MRI is getting one of the brain at the same time. Two for one, he said.

We have heard some suggestions from staff about looking at the next stage for Kevin’s care. Meadowbrook is an LTAC. An LTAC is to help transition Kevin from the ICU to a more healthy, stable life. His vitals have continued to improve. His scarring is healing on the right side of his head. His swelling has gone down from his left arm, where the clot is. The PA said that his pneumonia is doing better. And his pseudomonas is something that can get better, but that he would have the bacteria in his lungs as long as he has the trach tube. The next stage depends on a few factors. In order to move to a rehab center, Kevin would need to be able to participate in rehab therapy three hours per day. At this stage, we aren’t sure if this is possible. Most of it would be range of motion and things like that. He isn’t at the point to do it on his own yet, since he isn’t really waking up. He just seems more alert at times than others.

Another option for the next step would be a skilled nursing center. These are usually a part of a nursing center, but are more advanced and for patients that need more attentive care. If Kevin still has his trach tube in, we are limited in choice to five different places in the Tulsa area. One in Bixby, one in Inola and three in Tulsa. However, the PA came in today and said that they wanted to try out a trach cap today on Kevin. Basically, it caps Kevin’s trach tube, removing the tube that goes into his trach. This gives him a trial run of breathing only through his nose and mouth. Another RT, had told me he was breathing some through his nose the other day, even with the trach in. If this trial goes well, we can look at taking the trach out completely, but putting in a trach button which keeps the hole from closing.

Please pray that Kevin breathes fine without the trach help, that is with the trach cap on. Pray for his continued healing. Pray for him to wake up. I just finished playing for Kevin a Don Williams CD I picked up. His eyelids fluttered when the music came on. Lord, I hope this day is good. In fact, we know that in all things God works for the good of those who love him, who have been called according to his purpose. Thanks for always planning a good day for us God.

Thanks for reading, praying and encouraging,
Matt, Angie and family
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