This morning has been another roller coaster. I wonder at times, at what point that becomes normal. After several meetings on the phone and in person, here at Meadowbrook, I think that we may have reached a milestone when it comes to family training. At all times, whether our family is watching or practicing care techniques there is to be someone in the room from the staff. When we are trained in something and are signed off as trained, we do not become responsible for that task. Each task is still the responsibility of the hospital staff. Kevin’s doctor, who learned of this trend this morning, described it this way….we are ‘not responsible for running a hospital’. We are being trained for home health care. We are learning and being supervised. But the staff is still charting and following schedules of medicine, turning, etc…. Some of the confusion of training was cleared up today as well.
I made someone cry this morning. Now, let me be fair, I never once raised my voice, and I was calm the entire conversation. That may not always be the case, but it was today. I dared to suggest when asking a question about inconsistency that something had not been done that was supposed to have been done. Asked to leave the office, I stood dumbfounded as to what had just happened. We were told to do one thing in home health care, when we hadn’t seen it done here at Meadowbrook. So, asked how imperative it was to do it, and if it was why it hadn’t been done so far here. Someone else eventually answered the question.
Two people have sent us links about a medical breakthrough going on in Europe. There is a man who was misdiagnosed after a severe traumatic brain injury, after having a new type of scan. Here’s a link to the story http://www.dailymail.co.uk/news/worldnews/article-1230092/Rom-Houben-Patient-trapped-23-year-coma-conscious-along.html. He was misdiagnosed for twenty-three years.
With a time crunch to get Kevin’s stuff out of the restoration company’s storage, repairing and preparing the house, training at the hospital, we are able to hold our heads above water only due to the grace of God. People are screaming at us on all sides. There interest is the most important to them, so it feels like everyone wants everything done at the same time. We are holding together though. Thanks for the prayers and encouragement.
Thanks for reading and praying. It means so much to our family during this crisis.
Matt, Angie and family
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http://www.prayforkevin.com/
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